Your doctor might prescribe a drug with Epclusa to help treat your hepatitis C. Liver transplant. This may cause serious liver problems including liver failure and death. 3 month after my 18th birthday i feel like this disease has ruined my life. I have been done with my cure for 6 weeks or more. hepatitisB infection. I was like, Why didnt I do this sooner? I wish I would have cured my Hep C with EPCLUSA sooner. respective owners. But congrats on being virus-free! We also went over the possible side effects of EPCLUSA, like headache and tiredness. EPCLUSA and certain medicines may affect each other, or cause side effects. pharmacist about all the medicines you take. Keep reading to learn more. Check with your doctor or pharmacist if its safe for you to try an over-the-counter hydrocortisone cream. They may have other suggestions. Before starting EPCLUSA treatment, your healthcare provider will do blood tests to check for genotype 1-6 infection with or without cirrhosis It's hard to think rationally when you're mind is focused on all the ways you think you have ruined your life. Your side effect notes can include things like: Keeping notes and sharing them with your doctor will help them learn more about how Epclusa affects you. If you become pregnant while taking the drug, call your doctor right away. This can cause redness or other discoloration of the skin. Be sure to talk with your doctor about whether Epclusa treatment is right for you if youve had a liver transplant. following symptoms: fainting or near-fainting, dizziness or lightheadedness, Get medical help right away if you take amiodarone with EPCLUSA and get any of the following symptoms: fainting or near-fainting, dizziness or lightheadedness, not feeling well, weakness, extreme tiredness, shortness of breath, chest pains, confusion, or memory problems. These symptoms could be life threatening and require immediate medical care. However, drinking alcohol may raise your risk for certain side effects of Epclusa. If your doctor confirms that you had a mild allergic reaction to Epclusa, theyll decide if you should continue using it. I was told that I would be clear, but it didnt work out that way. Some people may experience mild side effects while taking Epclusa. After I finished treatment, my test results came back negative. EPCLUSA was approved by the FDA IN 2016. Talk with your doctor to learn more. Im as happy as can be when Im at home, hanging out with my family and friends, washing my car, cutting my grass, stuff like that. My doctor and I talked about any other kind of medications that I was taking that might interact with EPCLUSA. EPCLUSA is a prescription medicine used to treat adults with chronic (lasting a long time) hepatitis C (Hep C) genotype 1-6 infection with or without cirrhosis (compensated). [2][3][4] It is more than 90% effective for hepatitis C genotypes one through six. Talk to your doctor or call 1-844-4-EPCLUSA (1-844-437-2587) for more information. Get medical Call 911 or your local emergency number if your symptoms feel life threatening or you might be having a medical emergency. I took it with my other medications. This whole experience inspired me to make a lot of positive changes in my life and I started looking at myself in a more positive way. Epclusa contains two antiviral ingredients, sofosbuvir and velpatasvir, and may be used to treat chronic hepatitis C in adults and children aged at least three years old. Before starting EPCLUSA treatment, your healthcare provider will do blood tests to check for hepatitis B infection. EPCLUSA? Before starting EPCLUSA, your doctor will test if you have had hepatitis B, which may flare up and could cause serious liver problems, during and after treatment. Fitting EPCLUSA into my daily routine was simple. FDA Approved: * June 28, 2016 Pharm Company: * GILEAD SCIENCES INC Category: Hepatitis Sofosbuvir/velpatasvir, sold under the brand name Epclusa among others, is a fixed-dose combination medication for the treatment of hepatitis C in adults. I really trusted my doctor. By that point, I had made the decision to stop using drugs, and I knew in my heart that Im never going back to that lifestyle again. healthcare provider will monitor you It comes as a tablet and as pellets, both of which you take by mouth. My doctor and I talked about any other kind of medications that I was taking that might interact with EPCLUSA. Three months after I finished treatment, I went to the doctor, and I found out that my hepatitis C was non-detectable. That diagnosis devastated me. Epclusa can be used by people without cirrhosis or with compensated cirrhosis (early-stage cirrhosis with no symptoms). side effects, including: What should I tell my Understanding Epclusa Cirrhosis symptoms may include: If you have cirrhosis, its important to keep up with blood tests and doctor appointments so your doctor can monitor your liver health. Epclusa is a two-drug combination administered as a single daily pill containing the viral NS5A inhibitor Velpatasvir and Sofosbuvir. Talk with your doctor about your health history before you take Epclusa. EPCLUSA, the EPCLUSA logo, GILEAD and the GILEAD logo are trademarks of Gilead Sciences, Inc., or its related companies. You may be rid of the virus now however the liver now has to heal. Like most drugs, Epclusa can cause an allergic reaction in some people. See complete Important SafetyInformation below. If youre experiencing symptoms that bother you or dont go away, talk with your doctor. Continued HCV sales declines for the big biotech were expected, but not anemic growth for its HIV franchise. Three months after your treatment is completed, you will have a blood test to see if your treatment was effective. I spent at least 25 years of my life behind bars. Please see Starting treatment for your hepatitis C early may lower your risk for complications, including cirrhosis and liver cancer. Im lucky to be where Im at now in my life, and any day without Hep C is a blessing. EPCLUSA and certain other medicines my affect each other, or cause side effects. What are the possible side For me, it was easy to remember to take one more pill as part of my routine. you have HIV; or if you are pregnant or breastfeeding, or plan to become pregnant or breastfeed. treat adults with chronic hepatitis C (Hep C) Hepatitis B virus reactivation: My name is Butch. We did some routine blood work, and the doctor came back into the room and said, Were you aware that you had hepatitis C? And that was the first time that Id heard the term hepatitis C mentioned, and I remember specifically saying, Well, how do we cure it? My treatment wasnt going to be a financial burden on my family. Taking amiodarone with EPCLUSA may cause a serious slowing of your heart rate. The most common side effects of EPCLUSA include headache and tiredness. The next 8 weeks gives the Epclusa enough time for tough cases. If Initially, I didnt you know really think about hepatitis at all. Depression is a serious illness and taking it lightly can cause you great discomfort, and it can even lead to feelings of suicide. In 2005, my life changed forever. For me, it was easy to remember to take one more pill as part of my routine. So, um, I made an appointment, and I went in. Epclusa is a medicine that contains the active substances sofosbuvir and velpatasvir. EPCLUSA is a prescription medicine used to treat adults with chronic (lasting a long time) hepatitis C (Hep C) genotype 1-6 infection with or without cirrhosis (compensated). Also let them know about any vitamins, herbs, or supplements youre using. My doctor recommended EPCLUSA to treat my Hep C, and, before I started treatment, I had a lot of questions. So, from the time I was diagnosed to the time that I started treatment, it was only like a month. The joint pain just started. I want to inspire other people that are living with Hep C. You know, its definitely curable, and so I encourage anybody that has Hep C to go talk to their doctor about effective treatments. In those with advanced cirrhosis (decompensated), EPCLUSA is used with ribavirin. In general, starting treatment with Epclusa as soon as possible is the best choice for your health. Like all medications, Epclusa may cause side effects in some people. I took one pill once a day without food, and I did it for 12 weeks. Good, write that down too. Ask your doctor if EPCLUSA can be your kind of cure. Tap for Important Safety Information about EPCLUSA including Important Warning on hepatitis B you have ever had hepatitis B, the hepatitis B virus It was really convenient for me. Epclusa is used in children ages 3 years and older. Tell your healthcare provider and pharmacist about all the medicines you take, including prescription and over-the-counter medicines, vitamins, and herbal supplements. Before starting EPCLUSA treatment, We also discussed any other medications I was taking that might interact with EPCLUSA. However, if a rash bothers you or doesnt go away, consider trying these tips: Try not to scratch the areas of your skin affected by a rash, as this may further irritate the skin and raise your risk for infections. A few to try include: Over-the-counter pain medications can be another way to relieve headaches. Years later, I went to my doctor. tests to check for hepatitis B infection. I feel to pieces but then got on with my life. Distract yourself with an enjoyable activity or change of scenery, even if this just involves going outside for some fresh air. I have a great relationship with my doctor, and I really trusted his opinion. 2021 Gilead Sciences, Inc. All rights reserved. A boxed warning is the most serious warning from the Food and Drug Administration (FDA). 2021 Gilead Sciences, Inc. All rights reserved. I knew I needed to take care of myself and treat my Hep C. Then, one day I started seeing ads for EPCLUSA. If you have ever had hepatitis B, it may flare up and could cause serious or life-threatening liver problems. The most common side effects of EPCLUSA in adults include headache and tiredness. The recommended dose of Epclusa in adults is one 400 mg/100 mg tablet, taken orally, once daily with or without food (see section 5.2). But, um, the side effects were too much for me, and I had to stop taking it. is addressed to your child (in this case please read "your child" instead of "you"). Epclusa is a very well-tolerated medication with minimal side effects. Ultimately, I felt like this was the right treatment for me, and we decided to move forward. I am on day 14 of Epclusa and all had gone well with allot of water consumption. EPCLUSA is a prescription drug that treats chronic hepatitis C virus (HCV). 2021 Gilead Sciences, Inc. All rights reserved. EPCLUSA and certain medicines may affect each other, or cause side effects. If you have concerns about getting a skin rash from Epclusa, talk with your doctor. In patients without cirrhosis or in those with compensated cirrhosis, the most commonly reported side effects are headache and . People diagnosed with it usually take medication to relieve the symptoms and control the infection. At that point, I was so anxious for treatment. you have HIV; or if you are pregnant or breastfeeding, or plan to become pregnant or breastfeed. If you are at risk, your healthcare provider will monitor you during and after taking EPCLUSA. Tell your healthcare provider if you have any side effect that bothers you or does not go away Slow heart rate (bradycardia): EPCLUSA, when taken with amiodarone (Cordarone, Nexterone, Pacerone), a medicine used to treat certain heart problems, may cause slow heart rate. I just felt like nobody seen me, nobody cared about me. The recommended dose of Epclusa in paediatric patients aged 3 years and above is based on weight as detailed in Table 3 (see section 5.2). pains, confusion, or memory problems. Talk with your doctor to see if Epclusa could interact with any treatments you take. What Epclusa is and what it is used for . I felt like a nobody, and whenonce I got cured, I felt like a somebody. See complete Important SafetyInformation below. It was like the biggest weight in the world was lifted right off my shoulders. . I was extremely concerned, Ithat it was gonna get worse, and I really wanted to get treatment. I was hospitalized for a few days and received several blood transfusions. Tell your healthcare provider about all First, my wife was diagnosed with it and, um, when she came home, she explained to me what the doctor told her, and itd be a good idea for me to go in and be tested. You ruin your life when you are not grateful. genotype 1-6 infection with or without cirrhosis www.fda.gov/medwatch Theres just so much to be grateful for. I just thought it was a temporary thing. My doctor said EPCLUSA would be a good option for me because it treats all types of chronic Hep C. Before starting EPCLUSA, your doctor will test if you have had hepatitis B, which may flare up, and could cause serious liver problems during and after treatment. In some cases slow heart rate has led to death or the need for a pacemaker The benefits and side effects of EPCLUSA were evaluated in four clinical trials. So, my doctor called in the prescription to the specialty pharmacy. again during and after treatment with EPCLUSA. I got it from a former boyfriend who was using drugs. Find out how your diet. Before starting EPCLUSA, your doctor will test if you have had hepatitis B, which may flare up and could cause serious liver problems, during and after treatment. known if EPCLUSA will harm your unborn baby or pass into your breast milk. When it came time to treat his Hep C, EPCLUSA fit into Butchs routine. sofosbuvir/velpatasvir (Epclusa) Patient Input Submission - Canadian Liver Foundation 4 don't eat wrong foods as they keep me up as well. I absolutely blame myself for it. your healthcare provider will do blood We also went over the common side effects of EPCLUSA like headache and tiredness. I dont know that I could have done it any other way. Gratitude means to appreciate the things you have. Get medical help right away if you take amiodarone with EPCLUSA and get any of the following symptoms: fainting or near-fainting, dizziness or lightheadedness, not feeling well, weakness, extreme tiredness, shortness of breath, chest pains, confusion, or memory problems. pharmacist about all the medicines you take. Then, I had my follow up appointment, and the blood work showed that it was completely gone. But instead I said, 'You ruined my life!'". If you have ever had hepatitis B, the hepatitis B virus could become active again during and after treatment with EPCLUSA. I guess its a death sentence but lost almost three months of my life in a daze. It was like a burden off my shoulders. Although its not common, Epclusa can cause a mild skin rash in some people. pharmacist about all the medicines you take, including prescription and over-the-counter In just 12 weeks (about 3 months), Epclusa can treat all six types of chronic hepatitis C infection in adults and children, ages 3 and older. However, this condition is common in people managing illnesses such as hepatitis C. If you experience depression, talk with your doctor about ways to manage your mood. and I was tested, and I seen that I had Hepatitis C, too. Keep watching for Important Safety Information including Important Warning on Hepatitis B reactivation. Epclusa is usually given as a single dose once daily with food. Epclusa is an experimental pan-genotypic, once-daily combination of Gilead's HCV drug Sovaldi (400 mg) and velpatasvir (a pan-genotypic NS5A inhibitor; 100 mg). I've ruined my life. My wife was cured with EPCLUSA as well. genotype 1-6 infection with or without cirrhosis However, this side effect wasnt reported in studies of Epclusa. He looked at my labs, and he said that EPCLUSA was the right treatment for me. This site is not controlled by Gilead Sciences, Inc. Gilead Sciences, Inc. is not responsible for the site's content or your use of the site. Tami's Nomadic RV Life 7.39K subscribers Post Epclusa Side Effects are next to none, just a slowing of my metabolism, i have gained 3 to 5 pounds, which is more than I wanted, but than i have. We are . That made it affordable for me. It was such an amazing feeling! Epclusa is a brand-name prescription drug thats used to treat hepatitis C virus (HCV) in adults and certain children. After youve finished the 12-week Epclusa treatment, you wont be cured of hepatitis C right away. not sure what i am doing. In those with advanced cirrhosis (decompensated), EPCLUSA is used with ribavirin. healthcare provider before taking EPCLUSA? Also extreme fatigue sometimes sleeping 12-14 hrs straight. But even if all of your symptoms improve with treatment, the virus doesnt get completely cleared from the body. Side effects after treatment werent reported in studies of Epclusa. I admit I was somewhat skeptical because Id been through two rounds of treatment previously. Visit, Please see other than hepatitis C infection, or a liver transplant; if you have kidney problems or are on dialysis; if EPCLUSA and certain other medicines may affect each other, or may cause side effects. Brittany found additional support by calling the EPCLUSA Education Line. 1-800-FDA-1088. What do we need to do?. This contains the same active ingredients as Epclusa (velpatasvir and sofosbuvir). Hepatitis B virus reactivation: Before starting EPCLUSA treatment, your healthcare provider will do blood tests to check for hepatitis B infection. After all that time, I wanted to be cured of my Hep C and put it behind me. Watch stories from real people who have cured their chronic Hep C with EPCLUSA. Slow heart rate (bradycardia): EPCLUSA, when taken with amiodarone (Cordarone , Nexterone , Pacerone ), a medicine used to treat certain heart problems, may cause slow heart rate. medicines, vitamins, and herbal supplements. Pay as little as $5 per co-pay. Epclusa's approval is supported by data from four international Phase 3 studies, ASTRAL-1, ASTRAL-2, ASTRAL-3 and ASTRAL-4. My doctor felt confident in recommending EPCLUSA. But I wasnt sure if I could afford the treatment. EPCLUSA is a prescription medicine used to treat adults with chronic (lasting a long time) Before starting EPCLUSA treatment, Taking certain other drugs with Epclusa can make your hepatitis C treatment less effective. EPCLUSA is a prescription medicine used to He said it could be taken with or without food and I only had to take it for 12 weeks, rather than injections with Interferon. That got me thinking. Im Chris. Now I know that there is financial support for patients with Hep C. EPCLUSA is my kind of cure. Learn about viral load and what the numbers mean regarding hepatitis C, including why and how often to get tested. If you take EPCLUSA with ribavirin, you should also read the ribavirin Medication Guide for important pregnancy-related information. I was just elated. And your doctor can use this information to adjust your treatment plan if needed. One pill, once a day. EPCLUSA, when taken with amiodarone (Cordarone, I was happy to know EPCLUSA was not like Interferon. EPCLUSA is a prescription medicine used to treat adults with chronic (lasting a long time) hepatitis C (Hep C) genotype 1-6 infection with or without cirrhosis (compensated). I have major tinnitus and cannot sleep, my back hurts, my vision has gotten worse, emotionally drained, irritable, hopeless, and don't feel right at all. Over time, this damage can cause cirrhosis (liver scarring). EPCLUSA? i'm so sick all the freaking time and im starting to lose it. There is still hope. If you have ever had hepatitis B, the Tell your doctor if you have had hepatitis B, other liver or kidney problems, HIV, or other medical conditions, and all medicines you take including herbal supplements. With my Hep C, I had no symptoms, but, um, I was scared I might pass it on to one of my kids, and I worried that it might catch up to me as I got older. Symptoms of an allergic reaction can be mild or serious and can include: If you have mild symptoms of an allergic reaction, such as a mild rash, call your doctor right away. treat adults with chronic hepatitis C (Hep C) Cure means the Hep C virus is not detected in the blood when measured 3 months after treatment is completed. Yes, we may have made decisions that have had a negative impact, but with self-awareness and a willingness to address our patterns of behaviour, we can allow ourselves to adapt. I mean, I was emotional. I want people to know that you can do something about Hep C. No matter how long ago you was diagnosed even if you dont have any symptoms you shouldnt put it off. If blood tests show that HBV has returned, your doctor will treat it. We avoid using tertiary references. Hi all. We also went over the common side effects of EPCLUSA like headache and tiredness. 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